The When I’m Better Foundation was born out of our own experience during our son’s battle with DIPG in 2022-2023. During that time, we were blessed to have a community and family who not only lifted us up in prayer and strength but also helped us out of financial ruin. We understand firsthand the despair and emotional exhaustion that comes with a DIPG/DMG diagnosis.

When a child is diagnosed with DIPG/DMG, most parents are forced to stop working. This creates a financial burden compounded by the emotional strain of caring for a child with a terminal illness. As the disease progresses, the physical toll on the parents is also immense. Watching your child endure such an awful disease takes a tremendous toll on a parent’s mental, emotional, and physical health, often causing them to decline just as quickly as their child.

At the When I’m Better Foundation, we are committed to easing some of that burden. Our mission is twofold: funding cutting-edge research for DIPG/DMG and providing financial relief to families in need. If you are a family in need of assistance, please fill out the form below. We are here for you, and we stand with you in this difficult journey.